Patient Bill of Rights

As a client of the Hemophilia Center of WNY you have the right to:

  • Receive service(s) without regard to age, race, color, sexual orientation, religion, marital status, sex, national origin or sponsor;
  • Be treated with consideration, respect and dignity, including privacy in treatment;
  • Be informed of the services available at the Hemophilia Center;
  • Be informed of the provisions for off-hour emergency coverage;
  • Be informed of the charges for services, eligibility for third-party reimbursements and, when applicable, the availability of free or reduced cost care;
  • Receive an itemized copy of his/her account statement, upon request;
  • Obtain from his/her health care practitioner, or the health care practitioner’s delegate, complete and current information concerning his/her diagnosis, treatment and prognosis in terms the patient(s) can be reasonably expected to understand;
  • Receive from his/her physician information necessary to give informed consent prior to the start of any non-emergency procedure or treatment or both.  An informed consent shall include, as a minimum, the provision of information concerning the specific procedure or treatment or both, the reasonably foreseeable risks involved, and alternatives for care or treatment, if any, as a reasonable medical practitioner under similar circumstances would disclose in a manner permitting the patient to make a knowledgeable decision;
  • Refuse treatment to the extent permitted by law and to be fully informed of the medical consequences of his/her actions;
  • Refuse to participate in experimental research;
  • Voice grievances and recommend changes in policies and services to the Hemophilia Center’s staff, the Hemophilia Center’s Board of Directors and the New York State Department of Health, without fear of reprisal;
  • Express complaints about the care and services provided and to have the Hemophilia Center investigate such complaints.  The Center is responsible for providing the patient or his/her designee with a written response within 30 days if requested by the patient indicating the findings of the investigation.  The Center is also responsible for notifying the patient or his/her designee that if the patient is not satisfied by the Center response, the patient may complain to the New York State Department of Health’s Office of Health Systems Management;
  • Access his/her medical record pursuant to the provisions of section 18 of the Public Health Law, and Subpart 50-3 of this Title;
    Privacy and confidentiality of all information and records pertaining to the patient’s treatment;
    Approve or refuse the release or disclosure of the contents of his/her medical record to any health-care practitioner and/or health-care facility except as required by law or third-party payment contract;
  • Authorize those family members and other adults who will be given priority to visit consistent with your ability to receive visitors; and
  • Make known your wishes in regard to anatomical gifts.  You may document your wishes in your health care proxy or on a donor card, available from the Center Authorize those family members and other adults who will be given priority to visit consistent with your ability to receive visitors; and Received:  Planning Your Health Care in Advance and Health Care Proxy (NYS 1430)

*You as a patient are entitled to a copy of these rights

Your donation to our Foundation will help us make a difference.

Sign up for eNews and Events